Too little too late – Children’s hospice hosts first international research conference

Barry Parkinson posted on Oct 10 2018

Some of the delegates and speakers at the Too Little Too Late research conference take a tour around Brian House Children’s Hospice, led by clinical manager Carol Wylde (third right).

Some of the delegates and speakers at the Too Little Too Late research conference take a tour around Brian House Children’s Hospice, led by clinical manager Carol Wylde (third right).

Brian House Children’s Hospice has hosted its first ever international research conference, welcoming speakers from across the globe.

The conference, called ‘Too Little Too Late’, explored research projects in children’s palliative care, and left delegates with ideas to develop their practice and projects to start working on.

Many of the people attending the event, which was held at the Bispham-based hospice in September, were from North-West universities and children’s hospices.

The speakers included Dr Andrea Postier, a scientific investigator for the Children’s Minnesota Research Institute in the USA, Dr Naveen Salins, a paediatric palliative care consultant in India and Estera Ciobanu, a PhD student and paediatric palliative care social worker in Romania.

The conference’s keynote speaker was Professor Jayne Price, an associate professor in children’s nursing at Kingston and St George’s Faculty of Health, Social Care and Education, London. She spoke about the challenges of carrying out research in children’s palliative care.

Also speaking at the event was Kelly Yare, whose son Roman attends Brian House for respite care.

Brian House’s clinical manager, Carol Wylde, said ‘A really good mix of professionals attended to listen to a variety of speakers focus on different topics within the field of paediatric palliative care. Our delegates and speakers worked together at the end of the day to discuss the priorities for future research and the future of palliative care. It was a really informative day from which everyone was able to take something back to think about and work on with their professional teams. We’re really grateful to everyone who came, from the delegates, the speakers and the organisations which held information stands. It was a really good day.’